Huge update on MND funding after the campaigning of Leeds Rhinos legends
Picture by Allan McKenzie/SWpix.com - 23/11/2021 - Rugby League - Kevin Sinfield Extra Mile Challenge - Mattioli Woods Welford Road to Headingley Rugby Ground, England - Kevin Sinfield (r) meets Rob Burrow at the finish line after completing his Extra Mile Challenge of 101 miles in 24 hours.
For a long time Leeds Rhinos legends Rob Burrow and Kevin Sinfield have been putting pressure on the government to release the £50 million they promised in the fight against Motor Neurone Disease.
Burrow was diagnosed with MND in December 2019 and since then Sinfield has raised over £6 million in the fight against it.
He ran seven marathons in seven days in 2020, 101 miles in one day in 2021 and recently ran seven ultramarathons in seven days.
But still the government funding wasn’t coming with people dying of MND daily including Burrow’s good friend Doddie Weir.
However, the Health and Social Care Secretary Steve Barclay has confirmed that he will set out plans to release the funding.
He said on Twitter: “I will set out our plans to cut red tape and accelerate the allocation of £50 million in funding for MND research, to make breakthroughs in finding a cure and improving treatments.”
Tomorrow I will set out our plans to cut red tape and accelerate the allocation of £50 million in funding for MND research, to make breakthroughs in finding a cure and improving treatments.
Read more @Daily_Express👇 https://t.co/CcG1DCartB— Steve Barclay (@SteveBarclay) December 11, 2022
Meanwhile, he said to the Daily Express: “We must do all we can to support these projects – which include understanding how different types of MND are passed on genetically and even unlocking new treatment options for patients using gene therapy.”
This is a huge win for the MND community and one that hopefully means that it won’t be long till we see a cure.